Friday morning.

It's Friday morning. They have taken Bree off the EEG machine and they have her in the shower now, washing her hair, giving her a "proper" shower. She is so happy to be getting one, but humiliated to have to have a nurse bathe her still. She's weak, she has a cough and does not feel well, most likely from aspirating fluid into her lungs. She is having four different types of seizures: Tonic-Clonic, absence, complex partial, and myoclonic. She went into "status epilepticus" yesterday which meant that her seizure was prolonged and it means literally "continuous state of seizure"
They are going to put Bree on Dilantin and Depakote to start. Because she's a small girl she will have only 125 MG Depakote 2x a day but they will probably have to increase her dose. The Dilantin is going to be trickier. She is going to have to take several doses a day. It's going to be a long road to get her doses right. She is going to have to have weekly blood test for 3 months, and then monthly blood tests. The doctor says he will want to see her again two weeks after she is released but it's going to take awhile before she reaches therapeutic levels of medicine in her blood. It may take months of testing until we get her seizures reduced. She could be hospitalized again. He will want her flown out here, of course. She will be getting a med alert bracelet. She will have both an apnea monitor that will show her blood pressure, heart rate, and oxygen levels and a seizure monitor that will record her seizures for the doctors. I'm going to run to the store now and get Bree a few things. Some snacks, something to cheer her up.