Last night was rough, and I wonder how long it's going to take to see if Lamitcal is going to work. It's been less then a week, I know. But it's hard to sit by and be patient when your child is suffering. She has already been on Depakote for a month and I can't see what good it is doing. It is supposed to work on all kinds of seizures. She is already up to 500 MG of Depakote. I just know that the doctor will increase her dose when we see him on Monday. She weighs less then 100 pounds so I wonder if that will be dangerous for her. I've done some research and from what I understand she can go up one more step in her dosage to 750, and that's it, unless she can gain a little more weight. Her primary care physican says she could stand to gain about 10 pounds, but it's okay if she can't. Not to push her. Just not to let her lose much more weight. She is drinking Ensure, usually with her breakfast so she's getting extra nutrients.
They draw her blood weekly (They'll drop it down to just monthly after 3 months, if she has no blood reactions) so that they can make sure the depakote is not causing any harm but still I worry. It can cause life threatening damage to the liver and pancreas. And she is at even higher risk for that since she is on two other seizure meds.
All of these meds carry risks. It's so hard to know what to do. She's getting so tired of the day to day struggle. She is trying to be strong but it's wearing her down. Once again she doesn't want to go to physical therapy and is begging to stay home. They told me a student would be helping today and I'm not sure how that will go. Bree says they don't treat her like a person in PT. And she's right, they don't really. If she doesn't move fast enough for them they move her body for her. And this humiliates her.
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