I can't believe it. It's only 8:05 and we have already been taken back. I'm waiting here with Brianna, or Bree as we call her, for the neurologist to come in and see her. Her appointment was at 8:00 am but at the hospital back home that could mean 8:30, 9:00... although our primary care physician is usually good about time. She's quiet this morning. I've brought along my laptop in case I had to wait while she was in testing.
It has only been 4 days since Bree has been told she has epilepsy and has been having seizures in her sleep. So far, only in her sleep. But it's scary for us (her family) to witness because she stops breathing sometimes, and it is terrifying for her because she has no idea what is happening to her. She just knows that she wakes up confused, feeling bad -sometimes. She wakes up in pain if she bumps into anything. And if she wakes up after any of the apnea episodes, she wakes up out of breath. If she gets up out of bed pretty soon after a seizure she has trouble walking and will crash into things. This scares her too and frustrates her. We were originally supposed to do a sleep study tonight back home but she was too upset and freaked out about this idea. This girl has severe PTST (post traumatic stress disorder) and generalized anxiety disorder and panic attacks. She has separation anxiety and other issues from the 18 years of abuse she had at the hands of her mom and dad. Yes she is 18 years old, but she has been through so much abuse that right now she needs not to be left alone or put through anything that will be too traumatic for her. So her doctor has sent her here, to Wake Forest Baptist Hospital to be evaluated and treated for her seizures. And speaking of doctors hers just walked in the room so I'll update later.
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