Thursday, November 5, 2009

Where is the year going?

It is November. It feels like I'm just getting used to writing 2009 on everything. This year has seemed to go by in a blur as we deal with everything that has gone on. Today Bree is finally on the target dose of Mysoline. It leaves her very groggy, confused, out of it. The new neuro wants her back on Klonopin and to try one med that he says she wasn't on long enough to give it a fair chance... Keppra. So if they keep going as planned she will be on 3 or 4 seizure meds after her Vagus Nerve Stimulator surgery. I just hope these help this time. They would like to try Topamax but a side effect of that one is weight loss and she is already losing weight. They are trying to get her to gain weight, in fact. It's so hard to see her go through all of this. Trying to get the right combo of drugs and then being told they may not be able to find it is devastating. But still we won't give up hope or give up trying until she is better, the ultimate goal is to have her seizure free. Sorry it's been so long between posts.

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