Still holding on

We're still holding on here. Bree goes back to the neurologist in June. She has another sleep study too. They want to repeat the test again, but I'm taking her somewhere where they will allow me to stay in the room with her. Things were busy last week. We had to drive to Spartanburg, SC yesterday for a funeral. We got lost (3 times!) and it was very hot there. Otherwise we're just holding out, trying out the new meds and dealing with all the side effects that come with it. I feel so powerless. Bree's speech and other issues just aren't improving. I'd give anything to help her.